Supervision Meeting for Nothando Ngwenya on the 17th of April 2008 at 4:15pm in Paul Kingston’s Office.
Present: PK, NN, SM
1) We had a discussion and gave feedback on the meeting that Stella and I attended at ….. Hospice on the 9th of April 2008. Feedback that we received at …… Hospice is as follows:
· Remove the bold and underlining of text within the information and consent sheet as this gives the impression that some information is more important than other.
· Add the amount of blogging time that will be required of the participants (3 months).
· Change the wording on the mental capacity inclusion of participants, to give them the option to either continue or withdraw
· Inform the participants that the supervisors will have access to the weblogs and might see the content.
· We also implemented a procedure of reporting distressing information or when it is necessary to breach confidentiality
2) We briefly discussed how we would recruit carers as there are limited support activities were I might contact them. We agreed that we would decide that when I start recruiting patients as their carers may be potential participants.
3) The way forward at …….. would be to attend a meeting with the day hospice team and decide on a recruiting strategy.
4) We all are in agreement on recruiting people who might be blogging already, and to include bereaved carers as they are involved in palliative care.
5) We briefly discussed attending the Life before death exhibition at the Wellcome Collection in London.
6) We agreed on that I would complete the first draft of Chapter 2 and submit it to Paul whilst Stella works on my Chapter 4 Revisions. To submit Chapter 2 on the 18th of April 2008.
7) Meeting at …….. Hospice will be on Thursday the 24th of April 2008 at 3pm.
Things to do by next meeting
1) Complete the first draft of Chapter 2 of the thesis.
2) Make the necessary changes suggested at …… Hospice and discussed during the meeting.
3) Chase up on appointment dates with …… and ……. Hospices.
Thursday 17 April 2008
Friday 11 April 2008
Project status
I know its been a while. I am quite happy with the progress of the project. Everything seems to be going well and coming closer to the real research work. At the moment I am working on my literature review. I thought it ight be easier as I had already read some parts but I am really finding it hard to be critical in my analysis. My style of writing is more descriptive and I know I have to be more critical and so I am working on that. The chapter I am doing now is more confusing that the last one. Some parts have a lot of litearure whereas some areas little has been written so far and I am finding it hard to get up to date articles. It doesnt help that the library's journal subscription is very limited and it costs £5 for a dpcument delivery request and sometimes by the time you get the article a lot of time has been wasted. Let me stop complaning because it can be worse, at least I have access to the Keele health library although if only I could have access to their online material.
Well with the project I have just been in celebratory mode since I got ethics approval. Anyway we went to St Giles on Wednesday the 9th to discuss the progress of the project. The meeting went quite well and Peter (CEO) is always ever so helpful and enthusiastic about the whole project its actually motivating. We discussed the information sheet and consent sheet and a few minor changes are required. We still have to meet the other hospices. Katharine House hospice meeting is on the 24th and hopefully Barnsley and Severn will follow soon after so that the project can start rolling.
I have laso had the opportunity to meet with a palliative care consultant Alison, who has been very very helpful and had me thinking of new ideas and given me a better awareness of ethical issues within my research. I will be meeting with her again to discuss further how she can be involved and assist within the project so I have to just keep looking up and up.
Oh yes bad news, my car. As I was driving to work on Monday mmh dodgy cars and mechanics. The wheel on my car was loose and it was coming off. It was just held in place by 2 nuts, I just cant bear to think what might have happened if I hadnt stopped. Anyway listening to my better conscious I stopped to have it checked at a garage by the road and well the guy told me what the problem was and that he would fix it, and bear in mind today is Friday and my car is still in the garage. Yep, its was just a tyre and you wont believe it. I ring the mechanic Monday end of the day and well he informs me that my brake pads need replacing and well I say go ahead coz really I didnt think much of it. I call on Tuesday to ask when I can collect the car only to be told that well, the master cylinder had to be replaced, otherwise the brakes wouldnt work. Okay so this work went on without my knowledge, and what can I say, its not as if I could just go and ick up the car as it was taken apart. I call on Wednesday and guess what, the servo needs to be replaced because the brakes are not responding. What can I say, work went on with my go-ahead again. I call Thursday and yep you guessed it, the brake discs need to be replaced. This time I just thought nonooooooooooooooooooooooooooooooooooooooooooooooooo, just stop doing anything to the car otherwise by the end of next week I would need to replace the whole thing, and yes you guessed it again my bill £367. I am so upset I am on theverge of depression and I am so skint, coz that was all my rainy day money and more. I could cut a chicken's head off now.
Bye
Well with the project I have just been in celebratory mode since I got ethics approval. Anyway we went to St Giles on Wednesday the 9th to discuss the progress of the project. The meeting went quite well and Peter (CEO) is always ever so helpful and enthusiastic about the whole project its actually motivating. We discussed the information sheet and consent sheet and a few minor changes are required. We still have to meet the other hospices. Katharine House hospice meeting is on the 24th and hopefully Barnsley and Severn will follow soon after so that the project can start rolling.
I have laso had the opportunity to meet with a palliative care consultant Alison, who has been very very helpful and had me thinking of new ideas and given me a better awareness of ethical issues within my research. I will be meeting with her again to discuss further how she can be involved and assist within the project so I have to just keep looking up and up.
Oh yes bad news, my car. As I was driving to work on Monday mmh dodgy cars and mechanics. The wheel on my car was loose and it was coming off. It was just held in place by 2 nuts, I just cant bear to think what might have happened if I hadnt stopped. Anyway listening to my better conscious I stopped to have it checked at a garage by the road and well the guy told me what the problem was and that he would fix it, and bear in mind today is Friday and my car is still in the garage. Yep, its was just a tyre and you wont believe it. I ring the mechanic Monday end of the day and well he informs me that my brake pads need replacing and well I say go ahead coz really I didnt think much of it. I call on Tuesday to ask when I can collect the car only to be told that well, the master cylinder had to be replaced, otherwise the brakes wouldnt work. Okay so this work went on without my knowledge, and what can I say, its not as if I could just go and ick up the car as it was taken apart. I call on Wednesday and guess what, the servo needs to be replaced because the brakes are not responding. What can I say, work went on with my go-ahead again. I call Thursday and yep you guessed it, the brake discs need to be replaced. This time I just thought nonooooooooooooooooooooooooooooooooooooooooooooooooo, just stop doing anything to the car otherwise by the end of next week I would need to replace the whole thing, and yes you guessed it again my bill £367. I am so upset I am on theverge of depression and I am so skint, coz that was all my rainy day money and more. I could cut a chicken's head off now.
Bye
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